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Familial pancreatic carcinoma

MedGen UID:
419700
Concept ID:
C2931038
Neoplastic Process
Synonym: Familial Pancreatic Cancer
Modes of inheritance:
Autosomal dominant inheritance
MedGen UID:
141047
Concept ID:
C0443147
Intellectual Product
Source: Orphanet
A mode of inheritance that is observed for traits related to a gene encoded on one of the autosomes (i.e., the human chromosomes 1-22) in which a trait manifests in heterozygotes. In the context of medical genetics, an autosomal dominant disorder is caused when a single copy of the mutant allele is present. Males and females are affected equally, and can both transmit the disorder with a risk of 50% for each child of inheriting the mutant allele.
Non-Mendelian inheritance
MedGen UID:
109109
Concept ID:
C0600599
Genetic Function
Source: Orphanet
A mode of inheritance that depends on genetic determinants in more than one gene.
 
Monarch Initiative: MONDO:0015278
OMIM®: 260350
Orphanet: ORPHA1333

Definition

Pancreatic cancer shows among the highest mortality rates of any cancer, with a 5-year relative survival rate of less than 5%. By the time of initial diagnosis, metastatic disease is commonly present. Established risk factors include a family history of pancreatic cancer, a medical history of diabetes type 2, and cigarette smoking (summary by Amundadottir et al., 2009). Genetic Heterogeneity of Pancreatic Cancer Somatic mutations in pancreatic cancer occur in the KRAS (190070), CDKN2A (600160), MADH4 (600993), TP53 (191170), ARMET (601916), STK11 (602216), ACVR1B (601300), and RBBP8 (604124) genes. Susceptibility loci for pancreatic cancer include PNCA1 (606856), related to mutation in the PALLD gene on chromosome 4q32 (608092); PNCA2 (613347), related to mutation in the BRCA2 gene on chromosome 13q12 (600185); PNCA3 (613348), related to mutation in the PALB2 gene on chromosome 16p12 (610355); PNCA4 (614320), related to mutation in the BRCA1 gene on chromosome 17q21 (113705); and PNCA5 (618680), related to mutation in the RABL3 gene on chromosome 3q13 (618542). Occurrence of Pancreatic Cancer in Other Disorders Several familial cancer syndromes increase the risk of pancreatic cancer. The best characterized include hereditary nonpolyposis colon cancer syndrome (HNPCC; see 120435); hereditary breast-ovarian cancer syndrome due to mutations in BRCA2; Peutz-Jeghers syndrome (175200); the melanoma-pancreatic cancer syndrome (606719), caused by mutations in CDKN2A (600160); von Hippel-Lindau syndrome (193300), ataxia-telangiectasia (208900) (Swift et al., 1976), and juvenile polyposis syndrome (174900). Patients with hereditary pancreatitis (167800) resulting from gain-of-function mutations in the protease serine-1 gene (PRSS1; 276000) have a lifetime pancreatic cancer risk ratio of 57 and a cumulative incidence, to age 70 years, of 40% (Lowenfels et al., 1997). [from OMIM]

Clinical features

From HPO
Increased level of L-fucose in urine
MedGen UID:
1646743
Concept ID:
C4703633
Finding
An increase in the level of L-fucose in the urine.
Neoplasm of the pancreas
MedGen UID:
18279
Concept ID:
C0030297
Neoplastic Process
A tumor (abnormal growth of tissue) of the pancreas.

Term Hierarchy

CClinical test,  RResearch test,  OOMIM,  GGeneReviews,  VClinVar  
Follow this link to review classifications for Familial pancreatic carcinoma in Orphanet.

Professional guidelines

PubMed

Goggins M, Overbeek KA, Brand R, Syngal S, Del Chiaro M, Bartsch DK, Bassi C, Carrato A, Farrell J, Fishman EK, Fockens P, Gress TM, van Hooft JE, Hruban RH, Kastrinos F, Klein A, Lennon AM, Lucas A, Park W, Rustgi A, Simeone D, Stoffel E, Vasen HFA, Cahen DL, Canto MI, Bruno M; International Cancer of the Pancreas Screening (CAPS) consortium
Gut 2020 Jan;69(1):7-17. Epub 2019 Oct 31 doi: 10.1136/gutjnl-2019-319352. PMID: 31672839Free PMC Article
Matsubayashi H, Takaori K, Morizane C, Maguchi H, Mizuma M, Takahashi H, Wada K, Hosoi H, Yachida S, Suzuki M, Usui R, Furukawa T, Furuse J, Sato T, Ueno M, Kiyozumi Y, Hijioka S, Mizuno N, Terashima T, Mizumoto M, Kodama Y, Torishima M, Kawaguchi T, Ashida R, Kitano M, Hanada K, Furukawa M, Kawabe K, Majima Y, Shimosegawa T
World J Gastroenterol 2017 Feb 14;23(6):935-948. doi: 10.3748/wjg.v23.i6.935. PMID: 28246467Free PMC Article
Hanada K, Okazaki A, Hirano N, Izumi Y, Minami T, Ikemoto J, Kanemitsu K, Hino F
Best Pract Res Clin Gastroenterol 2015 Dec;29(6):929-39. Epub 2015 Sep 26 doi: 10.1016/j.bpg.2015.09.017. PMID: 26651254

Curated

NCCN Clinical Practice Guidelines in Oncology, Genetic/Familial High-Risk Assessment: Breast, Ovarian, and Pancreatic version 2.2022

Recent clinical studies

Etiology

Kogekar N, Diaz KE, Weinberg AD, Lucas AL
Pancreatology 2020 Dec;20(8):1739-1746. Epub 2020 Oct 9 doi: 10.1016/j.pan.2020.10.025. PMID: 33077384
Petrusel L, Bilibou M, Drug V, Leucuta DC, Seicean R, Cainap C, Seicean A
J Gastrointestin Liver Dis 2020 Sep 9;29(3):391-398. doi: 10.15403/jgld-2529. PMID: 32919422
Lynch HT, Deters CA, Lynch JF, Brand RE
Fam Cancer 2004;3(3-4):233-40. doi: 10.1007/s10689-004-9549-8. PMID: 15516847
Hahn SA, Greenhalf B, Ellis I, Sina-Frey M, Rieder H, Korte B, Gerdes B, Kress R, Ziegler A, Raeburn JA, Campra D, Grützmann R, Rehder H, Rothmund M, Schmiegel W, Neoptolemos JP, Bartsch DK
J Natl Cancer Inst 2003 Feb 5;95(3):214-21. doi: 10.1093/jnci/95.3.214. PMID: 12569143
Tersmette AC, Petersen GM, Offerhaus GJ, Falatko FC, Brune KA, Goggins M, Rozenblum E, Wilentz RE, Yeo CJ, Cameron JL, Kern SE, Hruban RH
Clin Cancer Res 2001 Mar;7(3):738-44. PMID: 11297271

Diagnosis

James TA, Sheldon DG, Rajput A, Kuvshinoff BW, Javle MM, Nava HR, Smith JL, Gibbs JF
Cancer 2004 Dec 15;101(12):2722-6. doi: 10.1002/cncr.20700. PMID: 15534880
Lynch HT, Deters CA, Lynch JF, Brand RE
Fam Cancer 2004;3(3-4):233-40. doi: 10.1007/s10689-004-9549-8. PMID: 15516847
Eisold S, Ryschich E, Linnebacher M, Giese T, Nauheimer D, Wild A, Bartsch DK, Büchler MW, Schmidt J
Cancer 2004 May 1;100(9):1978-86. doi: 10.1002/cncr.20193. PMID: 15112280
Hahn SA, Greenhalf B, Ellis I, Sina-Frey M, Rieder H, Korte B, Gerdes B, Kress R, Ziegler A, Raeburn JA, Campra D, Grützmann R, Rehder H, Rothmund M, Schmiegel W, Neoptolemos JP, Bartsch DK
J Natl Cancer Inst 2003 Feb 5;95(3):214-21. doi: 10.1093/jnci/95.3.214. PMID: 12569143
Tersmette AC, Petersen GM, Offerhaus GJ, Falatko FC, Brune KA, Goggins M, Rozenblum E, Wilentz RE, Yeo CJ, Cameron JL, Kern SE, Hruban RH
Clin Cancer Res 2001 Mar;7(3):738-44. PMID: 11297271

Therapy

Kogekar N, Diaz KE, Weinberg AD, Lucas AL
Pancreatology 2020 Dec;20(8):1739-1746. Epub 2020 Oct 9 doi: 10.1016/j.pan.2020.10.025. PMID: 33077384
Petrusel L, Bilibou M, Drug V, Leucuta DC, Seicean R, Cainap C, Seicean A
J Gastrointestin Liver Dis 2020 Sep 9;29(3):391-398. doi: 10.15403/jgld-2529. PMID: 32919422

Prognosis

Petrusel L, Bilibou M, Drug V, Leucuta DC, Seicean R, Cainap C, Seicean A
J Gastrointestin Liver Dis 2020 Sep 9;29(3):391-398. doi: 10.15403/jgld-2529. PMID: 32919422
de Mestier L, Muller M, Cros J, Vullierme MP, Vernerey D, Maire F, Dokmak S, Rebours V, Sauvanet A, Lévy P, Hammel P
United European Gastroenterol J 2019 Apr;7(3):358-368. Epub 2019 Jan 12 doi: 10.1177/2050640618824910. PMID: 31019704Free PMC Article
Lynch HT, Deters CA, Lynch JF, Brand RE
Fam Cancer 2004;3(3-4):233-40. doi: 10.1007/s10689-004-9549-8. PMID: 15516847
Eisold S, Ryschich E, Linnebacher M, Giese T, Nauheimer D, Wild A, Bartsch DK, Büchler MW, Schmidt J
Cancer 2004 May 1;100(9):1978-86. doi: 10.1002/cncr.20193. PMID: 15112280
Hahn SA, Greenhalf B, Ellis I, Sina-Frey M, Rieder H, Korte B, Gerdes B, Kress R, Ziegler A, Raeburn JA, Campra D, Grützmann R, Rehder H, Rothmund M, Schmiegel W, Neoptolemos JP, Bartsch DK
J Natl Cancer Inst 2003 Feb 5;95(3):214-21. doi: 10.1093/jnci/95.3.214. PMID: 12569143

Clinical prediction guides

Petrusel L, Bilibou M, Drug V, Leucuta DC, Seicean R, Cainap C, Seicean A
J Gastrointestin Liver Dis 2020 Sep 9;29(3):391-398. doi: 10.15403/jgld-2529. PMID: 32919422
de Mestier L, Muller M, Cros J, Vullierme MP, Vernerey D, Maire F, Dokmak S, Rebours V, Sauvanet A, Lévy P, Hammel P
United European Gastroenterol J 2019 Apr;7(3):358-368. Epub 2019 Jan 12 doi: 10.1177/2050640618824910. PMID: 31019704Free PMC Article
Hahn SA, Greenhalf B, Ellis I, Sina-Frey M, Rieder H, Korte B, Gerdes B, Kress R, Ziegler A, Raeburn JA, Campra D, Grützmann R, Rehder H, Rothmund M, Schmiegel W, Neoptolemos JP, Bartsch DK
J Natl Cancer Inst 2003 Feb 5;95(3):214-21. doi: 10.1093/jnci/95.3.214. PMID: 12569143
Yu KK, Zanation AM, Moss JR, Yarbrough WG
Laryngoscope 2002 Sep;112(9):1587-93. doi: 10.1097/00005537-200209000-00010. PMID: 12352668
Tersmette AC, Petersen GM, Offerhaus GJ, Falatko FC, Brune KA, Goggins M, Rozenblum E, Wilentz RE, Yeo CJ, Cameron JL, Kern SE, Hruban RH
Clin Cancer Res 2001 Mar;7(3):738-44. PMID: 11297271

Supplemental Content

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    Clinical resources

    Practice guidelines

    • PubMed
      See practice and clinical guidelines in PubMed. The search results may include broader topics and may not capture all published guidelines. See the FAQ for details.
    • Bookshelf
      See practice and clinical guidelines in NCBI Bookshelf. The search results may include broader topics and may not capture all published guidelines. See the FAQ for details.

    Curated

    • NCCN, 2022
      NCCN Clinical Practice Guidelines in Oncology, Genetic/Familial High-Risk Assessment: Breast, Ovarian, and Pancreatic version 2.2022

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